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https://zoom.us/j/91386616588?pwd=MGorZEY1V25XWkJ4dzIxT3JydWVjZz09

On Today's Call:

• Review:  
  • White paper
  • New Cardea use cases
• Presentation: Presentation: Jeff Grant and Glenn Keet, Citizen, Invitae

14 Sep 2023 9am PT/ 10am MT/ 12pm ET

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• Keela Shatzkin, Ken Ebert, Mike Ebert, Steve Davis, Tim Spring, Trevor Butterworth, Mike Ebert, Jeff Grant, Glenn Keet, Adrian Gropper, JD, Gigo Joseph, ManjudevarajHelen Garneau

Announcements:

• Next meeting: 910/2812

Previous Agenda Notes:

• • Transitioning to Hyperledger
    
    • Calendar transition
      • 2nd&4th Thursdays for now will continue
    • Groups io: https://lists.hyperledger.org/g/labs
      • Helen is admin
    • Notes/Materials
      • Old notes and materials have been transitioned to the wiki page
      • Can track notes real time
    • Zoom/Meeting Invites
      • Will transition to hyperledger zoom
      • Recordings are posted to youtube as “playlist” people can subscribe to
    • Chat
      • Move from slack to discord: https://discord.gg/hyperledger
      • #cardea channel under Labs 
    • Blog announcing transtition to Hyperledger:
      • https://www.hyperledger.org/blog/2023/05/10/cardea-a-privacy-preserving-open-source-ecosystem-for-verifying-health-data-joins-hyperledger-labs

New Meeting Introductions:

• • Discussion:
    • Glenn Keet, Lead, HIE Strategy & Business Development, Ciitizen, Invitae
    • Jeff Grant, Lead, HIE Implementation, Ciitizen, Invitae
    • Image Removed
    • Focus areas:
      • Populations
        • patients with Cancer
        • patients with Epilepsy
      • Connecting eligible patients to clinical trials
    • Patients are entitled to receive access to their medical records 
      • HIPAA 1996
      • 21st Century Cures Act 2018 (2021 enforcement)
    • Cures Gateway solution
      • self service solution to remotely request & receive their medical data
      • Identity verification
        • NIST IAL2
        • Standard protocols for interacting with HIEs
    • PHA = Personal Health App
      • 2% of the population have one
      • Ciitizen offers one to close the market gap
      • PHA has no cost to connect with Cures Gateway
      • Workflow:
        • Use 3rd party for id proofing technology: Persona
    • What's the point?
      • Solve a problem for HIEs with Cures compliance
      • Give patients access to their own records
        • enable sharing with research grade "computable" format
          • For second opinions and follow up care, sharing with providers
        • Marketplace for patients to be able to:
          • Find eligible trials
          • Sell their data if they want to
        • Leverage ML/AI for helping provide possible treatment options with outcome driven assessment
    • Where does the data live?
      • On the PHA (and with whatever their governance/terms and conditions are)
      • Consumer gets to choose their app and what they're willing to accept
      • Ciitizen PHA:
        • Storing the data in FHIR native solution
    • Blockchain
      • how does this get leveraged?
      • Identity credential
        • Exploring the idea of using API calls to other identity solutions to accept someone's federated solutions
        • Identity cost is a factor
        • Mutually authenticated connection allows patient and company to know they're talking to the right people
        • How to leverage in-person identity proofing?
      • Smart contracts
        • allow the patient to be able to govern who can utilize what specific data (diabetes but not MH for example)
        • Access control is also available to help manage this

  Future Agendas

  • • • Roadmap slide for white paper
        • Evaluation and market assessment for alternate implementations
        • Tune schemas to the new area of focus for Cardea
        • Expand agent functionality for latest in Biometic and security management
        • What else might need to be updated to bring this code into present use/compliance with standards?
          • Like connection creation/handshakes, etc
      • What happens with the whitepaper NEXT
        • Hyperledger blog update and description on the white paper updates and program overall
        • Promote the current scenario/use case
          • Identity SIG?
          • Meetup to discuss where we want to go with Cardea
      • Agendas and planning purposes
        • Interactions with HL7 - can we build a bridge
        • Lock in the messaging about the next use case... how to communicate and encourage engagement on
    • Keela to re-read the white paper to determine if we think a security best practices is needed

  Future Agendas

  • • Finalize messaging on the future/new focus use casesWhitepaper draft review- resuming from page 23

  Call Recording: