Page History

...

https://zoom.us/j/91386616588?pwd=MGorZEY1V25XWkJ4dzIxT3JydWVjZz09

On Today's Call:

• Review:  
  • White paper
  • New Cardea use cases
• Presentation: Presentation: Jeff Grant and Glenn Keet, Citizen, Invitae

14 Sep 2023 9am PT/ 10am MT/ 12pm ET

...

• Keela Shatzkin, Ken Ebert, Mike Ebert, Steve Davis, Tim Spring, Trevor Butterworth, Mike Ebert, Jeff Grant, Glenn Keet, Adrian Gropper, JD, Gigo Joseph, ManjudevarajHelen Garneau

Announcements:

• Next meeting: 910/2812

Previous Agenda Notes:

• • Transitioning to Hyperledger
    
    • Calendar transition
      • 2nd&4th Thursdays for now will continue
    • Groups io: https://lists.hyperledger.org/g/labs
      • Helen is admin
    • Notes/Materials
      • Old notes and materials have been transitioned to the wiki page
      • Can track notes real time
    • Zoom/Meeting Invites
      • Will transition to hyperledger zoom
      • Recordings are posted to youtube as “playlist” people can subscribe to
    • Chat
      • Move from slack to discord: https://discord.gg/hyperledger
      • #cardea channel under Labs 
    • Blog announcing transtition to Hyperledger:
      • https://www.hyperledger.org/blog/2023/05/10/cardea-a-privacy-preserving-open-source-ecosystem-for-verifying-health-data-joins-hyperledger-labs

New Meeting Introductions:

• • Discussion:
    
    • Glenn Keet, Lead, HIE Strategy & Business Development, Ciitizen, Invitae
    • Jeff Grant, Lead, HIE Implementation, Ciitizen, Invitae
  • Image Removed
  • Focus areas:
    • Populations
      • patients with Cancer
      • patients with Epilepsy
    • Connecting eligible patients to clinical trials
  • Patients are entitled to receive access to their medical records 
    • HIPAA 1996
    • 21st Century Cures Act 2018 (2021 enforcement)
  • Cures Gateway solution
    • self service solution to remotely request & receive their medical data
    • Identity verification
      • NIST IAL2
      • Standard protocols for interacting with HIEs
  • PHA = Personal Health App
    • 2% of the population have one
    • Ciitizen offers one to close the market gap
    • PHA has no cost to connect with Cures Gateway
    • Workflow:
      • Use 3rd party for id proofing technology: Persona
  • What's the point?
    • Solve a problem for HIEs with Cures compliance
    • Give patients access to their own records
      • enable sharing with research grade "computable" format
        • For second opinions and follow up care, sharing with providers
      • Marketplace for patients to be able to:
        • Find eligible trials
        • Sell their data if they want to
      • Leverage ML/AI for helping provide possible treatment options with outcome driven assessment
  • Where does the data live?
  • On the PHA (and with whatever their governance/terms and conditions are)
  • Consumer gets to choose their app and what they're willing to accept
  Ciitizen PHA:
  • Storing the data in FHIR native solution
  Blockchain
  • how does this get leveraged?
  • Identity credential
    • Exploring the idea of using API calls to other identity solutions to accept someone's federated solutions
    • Identity cost is a factor
    • Mutually authenticated connection allows patient and company to know they're talking to the right people
    • How to leverage in-person identity proofing?
  Smart contracts
  • allow the patient to be able to govern who can utilize what specific data (diabetes but not MH for example)
  Access control is also available to help manage this

Future Agendas

• • Whitepaper draft review- resuming from page 23

...