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- Discussion:
- Glenn Keet, Lead, HIE Strategy & Business Development, Ciitizen, Invitae
- Jeff Grant, Lead, HIE Implementation, Ciitizen, Invitae
- Focus areas:
- Populations
- patients with Cancer
- patients with Epilepsy
- Connecting eligible patients to clinical trials
- Populations
- Patients are entitled to receive access to their medical records
- HIPAA 1996
- 21st Century Cures Act 2018 (2021 enforcement)
- Cures Gateway solution
- self service solution to remotely request & receive their medical data
- Identity verification
- NIST IAL2
- Standard protocols for interacting with HIEs
- PHA = Personal Health App
- 2% of the population have one
- Ciitizen offers one to close the market gap
- PHA has no cost to connect with Cures Gateway
- Workflow:
- Use 3rd party for id proofing technology: Persona
- What's the point?
- Solve a problem for HIEs with Cures compliance
- Give patients access to their own records
- enable sharing with research grade "computable" format
- For second opinions and follow up care, sharing with providers
- Marketplace for patients to be able to:
- Find eligible trials
- Sell their data if they want to
- Leverage ML/AI for helping provide possible treatment options with outcome driven assessment
- enable sharing with research grade "computable" format
- Where does the data live?
- On the PHA (and with whatever their governance/terms and conditions are)
- Consumer gets to choose their app and what they're willing to accept
- Ciitizen PHA:
- Storing the data in FHIR native solution
- Blockchain
- how does this get leveraged?
- Identity credential
- Exploring the idea of using API calls to other identity solutions to accept someone's federated solutions
- Identity cost is a factor
- Mutually authenticated connection allows patient and company to know they're talking to the right people
- How to leverage in-person identity proofing?
- Smart contracts
- allow the patient to be able to govern who can utilize what specific data (diabetes but not MH for example)
- Access control is also available to help manage this
- Cardea
- What else is
- Discussion:
Future Agendas
- Whitepaper draft review- resuming from page 23
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