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Healthcare Special Interest Group (HC-SIG)

HC-SIG Overall Health

General

The HC-SIG continues to mature as its membership mix and participation evolves. Total membership appears to have stabilized in a range between 950 and 980 members.  We have successfully completed our transition to structure the general group to serve as a “front door” to better engage and keep prospective new members active in the community, align them with resources, and connect them more directly with our three HC-SIG subgroups and various ad hoc teams.

HC-SIG General Meetings are held regularly and are generally well-attended, with a pattern of membership "regulars" starting to be seen. It's clear that meeting topic and/or special guest speaker typically drives attendance numbers.

COVID-19 Response

From March through May of this year, and in direct response to the COVID-19 virus pandemic, the HC-SIG hosted a series of six HC-SIG Special Topic Meetings, with the intent of focusing the attention and engagement of HC-SIG membership and guest attendees on solving issues as they relate to the pandemic, ideally through the use of blockchain technologies. These meetings were very well attended, with attendance averages generally doubling through this special series of meetings.

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The Patient Subgroup continues to meet at a regular pace, and with a great deal of membership involvement. The Payer Subgroup has recently "rebooted" and is now seeing a renewal in membership engagement and most recently, acceptance of their pharmacy management project into Hyperledger Labs. The Healthcare Interoperability Subgroup--the newest HC-SIG subgroup–debuted earlier in the year, and continues to establish itself within the HC-SIG community, but is very slow in acquiring a regular membership core team and cadence.

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  • Active
    • Use Case Development Team: charged with the discussion and development of use cases as applicable in the context of the healthcare industry. This team held a very productive first meeting, but with a recent change in leadership, had been paused, but with new leadership in place,  will likely resume in the coming weeks.

  • In Recess
    • Survey Review Team: our annual review team convened and worked on the annual HC-SIG membership survey. The survey was released on February 14, with results available here
    Inactive
    • Academic Research Team: While this team was temporarily on hold as leadership stepped away on sabbatical, and had again begun working to re-establish a regular cadence, it has again slowed in development, and we are actively seeking leadership to drive this team forward.
    • Charter Review Team: charged with reviewing, rewriting, and maintaining the HC-SIG Charter. Currently in recess until a charter review is required.
    • Subgroup Review Team: convened to review the status of the EMR Subgroup, and to consider how other subgroup models may influence future HC-SIG subgroup designs (disbanded after making recommendations to leadership team)
    • Wiki Redesign Team: initially convened to redesign the HC-SIG wiki, now working to manage wiki page conversion to Confluence, and sync with other SIG design efforts. Currently in recess until needed for any future design/redesign efforts.
  • Inactive
    • Survey Subgroup Review Team: our annual review team convened and worked on the annual HC-SIG membership survey. The survey was released on February 14, with results available here.convened to review the status of the EMR Subgroup, and to consider how other subgroup models may influence future HC-SIG subgroup designs (disbanded after making recommendations to leadership team)

Of Merit

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Issues

  • Ongoing difficulties in assessing the value of work efforts exercised by HC-SIG leadership and membership attempting to broaden the overall appeal of the HC-SIG to new members

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    • Engagement metrics would be greatly appreciated in helping to assess the overall success of such efforts

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  • New since this the beginning of this year has been the deliberate attempt to extend HC-SIG General Meeting invitations and the use of social media cards through various social media channels, particularly for HC-SIG guest presentations

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    • It's currently unclear if new membership signups are correlated to these efforts

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Overall Activity in the Past

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Half Year

General Group

The general group serves as an entrée for prospective members in the global healthcare community interested in understanding how best to educate themselves and participate in the implementation of blockchain technologies–ostensibly using the Hyperledger Project umbrella of frameworks, tools, and extensive community–in order to create secure and healthcare-compliant enterprise solutions. For more established members, the general group serves as a resource for the notification and publication of relevant community healthcare activities (e.g., healthcare conferences and related events), as well as a means for promoting and encouraging the project engagement and accomplishments of each of its HC-SIG subgroups and ad hoc teams.

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Active since June, 2018 and led by Deniz Coskun, the Patient/Member Subgroup continues to work towards a build effort leveraging Hyperledger tools in the healthcare space. The group have meetings every other week and we are active in the healthcare Special Interest Group mailing list (see #patient-member-subgroup and see the Patient Subgroup page for details).The Patient/Member Subgroup underwent a transition in leadership in January and again in June, so we are again in the midst of a leadership pivot. Since the start of this quarter, subgroup membership has been surveyed on topics to investigate, and we believe to be settling around a work effort that will investigate the workflow of clinical trials utilizing Hyperledger Frameworks as a means to harmonize and integrate disparate clinical trial management software (CTMS) solutions. The first focus is the Informed Patient Consent process.

Focus to date has been on the group's econsent solution for use in clinical trials. Two Hyperledger frameworks, Sawtooth and Fabric, have been used to develop two equivalent platforms, allowing the comparison of each for the use case of patient data sharing and monitoring in clinical trials. 

Payer Subgroup

The Payer Subgroup had decided to reorganize with 2020. Group has been working with a payer to identify and refine the use case to start a POC. Group will resume starting January 30th, 2020 Meeting. 

  • Resetting the bi-weekly meetings starting January 30th. Meeting will move from every other Tuesdays to every other Thursdays and earlier in the day to ensure attendance from various parts of the world. 
  • Payer group is planning to kick off the POC with Hyperledger Fabric in later January. 

  • Group working on the Blockchain Decision paper that will help payers understand and identify the need for blockchain

    • Link to the work-in-progress white paper - Link to White Paper - IN-PROGRESS. Due to the lack of consistent members joining the meeting, this has slowed down. We are still continuing slowly to keep the momentum.

  • Group has also started talking about how to engage additional volunteers and recruit more volunteers. 

June 2020 Update

Payer Subgroup started strong with the re-organization and with a focus on a POC. 

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  • The establishment of regular speaker presentations from across the healthcare community to provide “real world” experiences in the design, implementation and establishment of a Hyperledger Project solution within their enterprise context. To date, our HC-SIG Guest Speaker presentations have been very successful at driving new HC-SIG membership interests

  • The establishment of additional HC-SIG subgroups or ad hoc teams that appeal to membership healthcare specialties

  • The ongoing design/redesign of the HC-SIG Wiki in order to:

    • Provide a more meaningful, consistent, and facile “front door” experience for new members to quickly discover HC-SIG resources and subgroups

    • For established members, serve as a dashboard of activities and accomplishments

    • Better separate (and highlight) our subgroups and ad hoc teams from general group coordination activities and governance

Patient Subgroup

With the shift to new leadership in June, the subgroup team has been active in identifying a clinical trials use case. The plan for the remainder of this upcoming quarter year will be to explore and mature the clinical trials use case to a point where a POC for Informed Consent Process, E-Consent Process Flow can be defined and requirements expressed. Standardization of API`s and Hyperledger Solutions is a high priority. Great participation from different cultures; (including, but not limited to, East & West Coast US, Switzerland, Ukranie and India). The group had calls almost twice a week, and created a fix team structure for the delivery of first POC on Hyperledger Sawtooth Framework. One of the important challenge was having SME Expert for E-Consent in the team. 

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  • Sawtooth POC next version with smart contracts, End of 2020
  • Fabric POC first version with smart contracts, End of 2020
  • Presentations for sponsorships and sponsorships and corporations
  • Adimissions for Admissions for international conferences (Hyperledger Global Forum 2020, HIMSS 2020) - cancelled due to Covid-19 Pandemy pandemic 

Payer Subgroup

We have made good progress in 2020 and momentum continues to further deliver value. Below are some planned activities for Payer Subgroup

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