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Active since June, 2018 and led by Deniz Coskun, the Patient/Member Subgroup continues to work towards a build effort leveraging Hyperledger tools in the healthcare space. We The group have meetings every other week and we are active in the healthcare Special Interest Group mailing list (see #patient-member-subgroup and for details).

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With the shift to new leadership in June, the subgroup team has been active in identifying a clinical trials use case. The plan for this upcoming quarter will be to explore and mature the use case to a point where a POC for Informed Consent Process, E-Consent Process Flow can be defined and requirements expressed. Standardization of API`s and Hyperledger Solutions is a high priority. Great participation from different cultures; (including, but not limited to, East & West Coast US, England, Switzerland, Hong Kong, Argentina, and India). The group had calls almost twice a week, and created a fix team structure for the delivery of first POC on Hyperledger Sawtooth Framework. One of the important challenge was having SME Expert for E-Consent in the team. 

Completed:

  • The use case for the Informed Patient Consent process is fixed, a roadmap for 2020 is decided
  • Two high level preliminary solution architectures are already in place, benchmark criteria (Fabric & Sawtooth) is defined 
  • Regulatory compliance is already discussed and compliance governance is defined (GDPR, FDA, HIPAA)
  • GitHub repositories have been proposed, network and structure is created
  • Proposals to two conferences were sent
  • Presentation of Team Work at the HC-SIG General Meeting Call, on 13th of Dec. 2019

Planned:

  • Sawtooth POC next version with smart contracts, Mid 2020
  • Fabric POC first version with smart contracts, Mid 2020
  • A lessons learned paper is to be prepared
  • Presentations for sponsorships and corporations
  • Presence at international conferences (Hyperledger Global Forum, HIMSS 2020 and others) 

Payer Subgroup

  • We are looking to expand the membership to include team members through our new recruitment approach. 
  • Starting to finalize POC/Use Case with one of the Vision Payers. They have requested not to be public till they establish the internal plan. 

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